Take Two Happy Pills and Call Me In the Morning

NB:  This post was originally written on October 24, 2008 in response to a couple news items I had read and revised in August, 2010, for submission to the latest Chronic Babe Blog Carnival (#10) which asks the question:  “How do you Deal with the Medical Establishment.”  Well, sometimes, I rant:

Half of Doctors Routinely Prescribe Placebos:

http://www.nytimes.com/2008/10/24/health/24placebo.html?_r=2&partner=rssnyt&emc=rss&oref=slogin&oref=slogin

Dr. Ezekiel J. Emanuel, one of the study’s authors, said doctors should not prescribe antibiotics or sedatives as placebos, given those drugs’ risks. Use of less active placebos is understandable, he said, since risks are low.

“Everyone comes out happy: the doctor is happy, the patient is happy,” said Dr. Emanuel, chairman of the bioethics department at the health institutes. “But ethical challenges remain.”

Happy?  How would this make me happy?  Why would I be happy about being given a fake or off-label drug that may work. But these aren’t always  the “sugar pill” placebos which are harmless, these are actual prescription medications that could harm a patient.

While the sugar in the placebo pill might give one some sort of sugar high for a few minutes and generate some sort of pseudo-happy feelings,  I doubt this is what this doctor is referring to.  Methinks this doctor and others like him may be the only ones who are happy.   “Happy” that they have done “something” about the patient’s “problem.”  Perhaps happier still that they have gotten  the patient out of their office in record time.  Maybe this one will work, the patient mutters unhappily as they leave the doctor’s office, prescription clutched in their hand.

Fibromyalgia Patients “Difficult”

Dr. William Schreiber, an internist in Louisville, Ky., at first said in an interview that he did not believe the survey’s results, because, he said, few doctors he knows routinely prescribe placebos.

But when asked how he treated fibromyalgia or other conditions that many doctors suspect are largely psychosomatic, Dr. Schreiber changed his mind. “The problem is that most of those people are very difficult patients, and it’s a whole lot easier to give them something like a big dose of Aleve,” he said. “Is that a placebo treatment? Depending on how you define it, I guess it is.”

Okay wait a minute here.  I have fibromyalgia. I didn’t chose this illness, it chose me.  I’m sorry if it makes me a “difficult patient.” If doctors only want the “easy” patients then they should leave medicine.  Have doctors that have that attitude ever been sick?  Or were they just not in line the day that the empathy gene was being passed out?

The reality is some of the treatments work some of the time for some of the people.  Some of the treatments don’t work at all. Often, the treatments cause undesirable side effects.  For me, after I was first diagnosed in 1996,  it became easy for me to fall into chasing the next treatment, the newest medication, the latest supplement, diet, vitamin, herb, etc. touted as being the “fix” for fibromyalgia.  After thousands of dollars spent, and feeling not really that much better,  I’m trying to get off that merry-go-round.

Dr. Mark J. Pellegrino, an MD who has fibromyalgia himself, and who has treated over 20,000 patients at his clinic in Ohio, states in his book “Fibromyalgia – Up Close and Personal”

Understand there is no magical pill that will get rid of all fibromyalgia symptoms.

Gee, not even a placebo?

No wonder chronic pain patients frequently experience depression.  I’d like to see a time where people like Dr. Schreiber walk a day in our shoes.   Maybe then things will change, but the cynic in me whispers I doubt it.

Today is National Fibromyalgia Awareness Day

Here are some things you can do to help spread awareness.

Hug someone you know and love who has fibromyalgia today.  Give them a call, send them an email or Twitter, let them know they are not alone.   Ask if they need help today.

We’d all love ya for it.

Fibromyalgia: Strategies for Living Well

 

 

 

Flower from the flax plant

 

(Taken from the broadcast January, 2010:  On the Line:  Fibromyalgia with Dr. Alison Bested MD and Dr. Alan Logan ND (Naturopathic Doctor)  http://www.ctstv.com/calgary/player.php?ctsvidID=17298&show=On%20The%20Line

Drug treatments include NSAIDs, opiods, anti-depressants, and Lyrica and Gabapentin.

My interest however was in non-drug strategies and treatments.  What I found interesting was that Dr. Bested spoke most often of non-drug treatments.  It’s been my experience that medical doctors are more interested in drug therapies for fibromyalgia. Certainly my medical doctor is. Some of these non-drug therapies include:

 

  • Identifying food sensitivities.  Many patients with fibromyalgia often have sensitivities to wheat, dairy, mold, and corn.  Identifying – and eliminating – sensitivities can lead to a 10% reduction in pain.
  • Other dietary strategies include:
    • Watch foods that can increase inflammation at the cellular level.  These include refined sugars, processed grains, corn syrups and trans fats.
    • Fibromites “use up” antioxidants more easily and faster than “normals” and thus require higher levels of the same.  Try to eat a variety of colorful fruits and vegetables as much as possible.  Include green leafy vegetables. Foods high in antioxidants include berries and green tea.
    • Include adequate amounts of protein in the diet.  I’d also like to add – include salmon and other fish that are high in Omega 3 oils (see below.).
    • Supplements are used but are just that – supplements – and do not take the place of a healthy, whole foods diet rich in antioxidants, green leafy vegetables, adequate fiber etc.
  • Nutritional oils (Omega 3 and 6 particularly) are effective anti-inflammatories.  Omega 3 oils are the fish oils and flax seed oils.  Omega 6 oils is found in evening primrose oil and flax seed oil (note:  some stomach upset may occur with evening primrose oil.*)   Therapeutic levels must be taken to achieve an anti-inflammatory benefit:  1 gram of Omega 3 and 300 mgs of Omega 6.   Heat is very helpful for fibromites, including infrared saunas, hot tubs, even hot baths.
  • Epsom salts in the bath helps detoxify the body.  Fibromyalgia sufferers have problems detoxing.
  • Therapeutic massage is helpful and it is recommended that to get the full benefit, fibromyalgia patients have an Epsom salts bath before and after the massage.  Do something relaxing after the massage, rather than stress the muscles more by doing an activity such as grocery shopping.
  • Chili pepper extracts, such as capsaicin, can be helpful in pain reduction.
  • Exercise is very important.  Start slowly and build up your tolerance. Start moving and keep moving. Dr. Bested spoke of a  woman with fibromyalgia, who had been bed-ridden for 2 years, and she started exercising (gradually, slowly) and is now able to go for walks, go to the mall, etc.  I can attest to the benefits of exercise.  I try to exercise 2  – 3 times a week. My fibromyalgia symptoms are so much better when I exercise, and not as good when I don’t.  You may need to see a osteopath or other medical professional to help put the muscles /joints back into alignment because of exercising — I see a chiropractor on a regular basis.

*As always, consult with your doctor or pharmacist for contra-indications and possible drug interactions with these or any other supplements or medications.

Mandatory disclaimer:  I am not a doctor, nor do I play one on TV (although that would be fun.)  I’m a patient.

 

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